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Epilepsy

Epilepsy is a condition that affects the brain. When someone has epilepsy, it means they tend to have epileptic seizures. Anyone can have a one-off seizure, but this does not always mean they have epilepsy. Epilepsy is usually only diagnosed if a doctor thinks there’s a high chance that the person could have more seizures. It can start at any age, and there are many different types. Some types of epilepsy last for a limited time, and the person eventually stops having seizures. But for many people, epilepsy is a life-long condition.

Supporting residents with epilepsy involves creating an inclusive and understanding community. Here are several endeavours that parish and town councils can undertake:

  • Use the three C’s campaign (Calm, Cushion, Call) to ensure everyone knows what to do if they see someone having a seizure. Stay CALM and stay with the person who is having a seizure. CUSHION their head with a coat or cardigan to stop them from injuring themselves. CALL an ambulance if the seizure does not stop after five minutes. Most seizures are self-limiting and will stop of their own accord within a couple of minutes. The person will need to be looked after until a friend or family member is called, but they may not need an ambulance.
  • Conduct educational campaigns to increase awareness about epilepsy within the community. It may include distributing informational materials, organising workshops, and collaborating with local healthcare professionals to dispel myths and provide accurate information.
  • Offer first-aid training programs that specifically address how to respond to seizures. Encourage community members, including local businesses and schools, to participate in these programs to ensure a prompt and appropriate response in case of a seizure.
  • Implement public information campaigns that promote understanding and dispel stigmas associated with epilepsy. Use various communication channels, such as local newsletters, social media, and community events.
  • Work towards making public spaces and facilities more accessible for individuals with epilepsy. It may include clear signage, well-lit pathways, and considerations of visual and auditory sensitivities.
  • Collaborate with emergency services to ensure that community emergency plans consider the needs of individuals with epilepsy. It may involve developing communication strategies and providing relevant information to emergency responders.
  • Compile and distribute information about epilepsy, including local healthcare services, support groups, and available resources. This information can be accessible through community centres, libraries, and online platforms.
  • Engage with individuals with epilepsy and their families to understand their needs and concerns. Regular community consultations can help tailor support initiatives to the unique requirements of residents with epilepsy.

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